Baylor College of Medicine

Dystonia Coalition Projects (H-28377)



This study aims to create a repository or an organized collection used for future research on dystonia and other diseases.  The repository will store biospecimens, videos, and clinical information.  Biospecimens include things like blood, DNA, and cell lines from your body.  Baylor College of Medicine and other research center will work together to put in information, videos, and samples from about ten thousand adults.  These adults include people who have dystonia or related disorders.  Researchers around the world will be able to use information, videos, and samples from all participants to do research that may lead to new tests and treatments.  Your videos may be used to create teaching programs that will help medical professionals administer neurological exams or use specific rating scales.  

You may be eligible to participate if you:  

  • have been diagnosed with isolated focal, segmental, multifocal, generalized, or hemi-dystonia


Rory Mahabir

Phone 1: 713–798–5989

IRB: H-28377




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