Center for Medical Ethics and Health Policy

Sequencing Trade-Offs: Evaluating Benefit-Risk Trade-Offs for Clinical Use of Whole Genome Sequencing


Project Description

Media Component
Gene Sequencing

This CSER-related project is aiming to develop and test an approach to examine how individuals and physicians make benefit-risk trade-off decisions about whole genome sequencing and the implications of these decisions in the healthcare system and society. The project will explore this issue using conjoint analysis comparing two populations, participants of the MedSeq project as well as a nationally representative sample of the general public.

Supported by: R01GH007063, National Human Genome Research Institute, NIH


Project Personnel


Principal Investigator

Kathryn Phillips, Ph.D., Principal Investigator


Center Project Personnel

Amy McGuire, J.D., Ph.D., Co-Investigator
Jill Oliver Robinson, M.A., Sr. Project Manager

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