Parents can be children’s greatest advocates—they live with them, they know them, they love them. For these reasons, they are often in the best position to provide information about how children behave and develop, particularly when delays or problems arise. It is critical for scientists and helping professionals to understand parents’ views of their children with ASD so that we can advise and support them in ways that encourage the most favorable outcomes for their children (e.g., through treatment selection).
See the following articles for more information about this program of research:
Mire, S.S., Gealy, W., Kubiszyn, T., Burridge, A., & Goin-Kochel, R.P. (2017). Parent Perceptions About Autism Spectrum Disorder Influence Treatment Choices. Focus on Autism and Other Developmental Disabilities, 32(4), 305 - 318.
Goin-Kochel, R.P., Mire, S.S., & Dempsey, A.G. Emergence of autism spectrum disorder in children from simplex families: Relations to parental perceptions of etiology. (2015). Journal of Autism and Developmental Disorders, 45(5), 1451-1463. PMID: 25398603.
Myers, B.J., Mackintosh, V.H., & Goin-Kochel, R.P. (2009). “My greatest joy and my greatest heartache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives. Research in Autism Spectrum Disorders, 3(3), 670-684.
Goin-Kochel, R.P., Mackintosh, V.H., & Myers, B.J. (2009). Parental reports on the efficacy of treatments and therapies for their children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3(2), 528-537.
Goin-Kochel, R.P., Myers, B.J., & Mackintosh, V.H. (2007). Parental reports on the use of treatments and therapies for children with autism-spectrum disorders. Research in Autism Spectrum Disorders, 1(3), 195-209.