Below we have compiled a list of related organizations, associations and resources. Pediatric and adult resources are grouped together.
Brain Injury Association of America - advance brain injury prevention, research, treatment and education and to improve the quality of life for all people affected by brain injury.
Think First - National Injury Prevention Foundation - National foundation dedicated to preventing head and spinal cord injuries in children
Hydrocephalus
American Brain Tumor Association - founded in 1973 by two families who lost children to brain tumors, ABTA is a global organization making major strides by funding brain tumor research and providing the information patients need to make educated decisions about their healthcare.
Acoustic Neuroma Association - provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves.
Brain Tumors in Children - Stanford Children's Health
Children's Brain Tumor Foundation - information and resources for families facing the challenge of a child with a brain or spinal cord tumor.
World Arnold Chiari Malformation Association
NORD Chiari Malformation Patient Resources
National Brain Tumor Society - non-profit organization whose mission is to provide resources, information, and support to people whose lives are affected by brain tumor disease and to fund brain tumor research.
Pediatric Brain Tumor Foundation - non-profit funder of childhood brain tumor research. Programs include free educational information about brain tumors, college scholarships and charity events.
VHL Family Alliance - dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease.
Epilepsy Foundation - works for children and adults affected by seizures through research, education, advocacy and service.
Children's Tumor Foundation - dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses.
National Organization for Rare Diseases (NORD) - a patient advocacy organizations dedicated to individuals with rare diseases and the organizations that serve them. These sets of pages are dedicated specifically to Neurofibromatoses.
Pediatric Neurosurgery - Texas Children's Hospital
Understand Spine Surgery - includes articles, videos and 3D medical animations
NORD Spina Bifida Patient Resources
Think First - National Injury Prevention Foundation - National foundation dedicated to preventing head and spinal cord injuries in children
VHL Family Alliance - dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease.