Understanding the Psychosocial Needs of Individuals with Osteogenesis Imperfecta Across the Lifespan (Brittle Bone)
In partnership with the Osteogenesis Imperfecta Foundation and Brittle Bone Disorders Consortium, researchers at Baylor College of Medicine are conducting a study to better understand the mental health and pain experiences of the individuals with Osteogenesis Imperfecta (OI). Through interviews with adult and pediatric patients with OI, caregivers of individuals with OI, and clinicians who serve patients with OI, the study team hopes to broadly scope the unmet mental health and pain needs of the OI community.
For this first phase of the study, the study team aims to recruit 50 participants, though larger studies will follow. Taking part in the study includes participating in an approximately one-hour online interview and the completion of a questionnaire, for which you will be compensated $50. If you or your child are interested in participating in the study, live in the US, and are between the ages of 8-89,