To us, research means finding cures to end diseases so people can lead long, healthy lives!
About the Study and Registry
We are inviting families to take part in a research study that will help us better understand the genetic causes of a type of cancer called rhabdomyosarcoma (RMS) or a rhabdomyosarcoma-like (RMS-like) tumor. To do this, we are studying and comparing genes of people with RMS and RMS-like tumors and genes of their parents and siblings.
Information we learn in this study may help to improve screening for RMS and RMS-like tumors in the future. Our overall goal is to learn more about how changes in DNA sequence (called genetic mutations) affect a person’s chance of developing RMS or an RMS-like tumor. This information may one day lead to improved cancer screening tests and maybe prevent cancer from developing in these children.