Resources for Families

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Upcoming Events

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Focus Group for the Black/African American parent or primary caregiver of a child ages 0-18 years with a special health care need

Saturday, March 26, 2022. View the event flyer.

$50 compensation for your time
1.5 to 2 hours
Transportation provided to The Kingdom Builder’s Center
Childcare provided for ages 2-13 years.

We invite you to a group discussion with other parents to inform us on how we should plan and carry out community events and research for families of children with special health care needs. This is planned by the Community Engagement and Outreach team of the Intellectual and Developmental Disabilities Research Center at Baylor College of Medicine.

Would you like to:

✓ let us know how best to plan outreach and community events for families of children with special health care needs?
✓ Let us know the research topics important to you and your family?

Then come to the Focus Group on Saturday March 26, 2022!

To join the discussion or ask any questions, please contact us at (832) 856-1774 or IDDRCfocusgroup@bcm.edu.

Repeating Events

Evenings with Genetics is a seminar series about genetics and your family’s health. This series offers the most current information on care and research for many genetic conditions and is open to the public.

SPARK Saturdays are a rare opportunity to meet with our research team 1-on-1 during convenient weekend hours to enroll in the SPARK for Autism research study or receive assistance collecting your family's SPARK saliva samples. Participating in-person increases the quality of the saliva samples collected and is great option for anyone who may have a hard time spitting on their own (ex: young children). RSVP to be notified of our next event!

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Want to Participate in Research?

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Clinical trials have led to important discoveries that make our lives better. Baylor College of Medicine is always seeking volunteers for our clinical research trials. Baylor conducts clinical trials that give participants access to the latest, most comprehensive diagnostic and treatment options available.

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Become a Participant in an IDDRC Research Study!

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Below are some of the currently enrolling studies from our IDDRC Investigators. Click the links below to learn more or contact us!

Study Title: SPARK for Autism at Baylor College of Medicine and Texas Children's Hospital
Baylor College of Medicine (in affiliation with Texas Children's Hospital) is one of a select group of 25 research institutions across the nation chosen by the Simons Foundation Autism Research Initiative to assist with recruitment for a new research study called SPARK, which stands for the Simons Foundation Powering Autism Research for Knowledge. Selection as a clinical site for SPARK underscores Baylor's history with previous SFARI projects, as well as our strength in autism and genetics research. In Texas, the SPARK effort is led by Dr. Robin Kochel, Ph.D, associate professor of pediatrics at Baylor College of Medicine, and associate director for research at the Texas Children's Hospital Autism Center.