Choosing to participate in a clinical trial is an important personal decision. The following information may help you make the decision that is right for you.
- Research is a study that is done to answer a question.
- Scientists do research because they don’t know for sure what works best to help you.
- Some other words that describe research are clinical trial, protocol, survey, or experiment.
- Research is not the same as treatment.
Why is research important?
Research has led to important discoveries that make our lives better. Some examples are:
- New drugs to treat cancer, diabetes, and other diseases
- Ultrasound, X-ray machines, and diagnostic tests
- Vaccines
- Ways to stop smoking
- Improved medical procedures
Points to Consider
- A research study may or may not help you personally.
- In the future, the results could help others who have a health problem.
- Research participation is voluntary.
Decision Tips
Before you decide to become a research volunteer, get the facts:
- Know what you’re getting into
- Ask questions: see recommended questions
- Learn as much as you can
- Know the pros and cons
Questions to Ask
Before you agree to participate in a research study, ask the study coordinator or principal investigator these questions.
- Why is the research being done?
- Will there be any unpleasant side effects?
- What will be done to me as part of the research?
- Will the research help me personally?
- Could the research hurt me?
- What other options do I have?
- What will the researcher do with my information?
- Can I leave the study at any time?
- Will the research cost me anything personally?
- Who pays if I’m unexpectedly injured in the study?
- How long will the study last?
- What happens if I decide to leave the study early?
- Who should I call if I have a question about the research?