Jill Oliver Robinson, M.A.

Research Manager - ELSI Research Program

(713) 798-5848

Email

jill.robinson@bcm.edu

Positions

Research Manager - ELSI Research Program: Center for Medical Ethics and Health Policy
Baylor College of Medicine
Houston, TX, US

Education

M.A. from University of Houston: 12/2009 - Houston, Texas, United States; Sociology

B.A. from University of Houston: 12/2006 - Houston, Texas, United States; Major, Sociology, Minor, Political Science

Professional Interests

Ethical, legal, and social implications of genomics and human genetics

Selected Publications

Lupo PL, Robinson JO, Diamond PM, Jamal L, Danysh KD, Blumenthal-Barby J, Vassy JL, Lehmann LS, Green RC, McGuire AL. " Patients’ perceived utility of whole-genome sequencing for their healthcare: Findings from the MedSeq Project. " Per Med. 2016 ; 13 (1) : 13-20.
Vassy JL, Christensen KD, Slashinski MJ, Lautenbach DM, Raghavan S, Robinson JO, Blumenthal-Barby J, Feuerman LZ, Lehmann LS, Murray MF, Green RC, McGuire AL. " “Someday it will be the norm”: Physician perspectives on the utility of genome sequencing for patient care " Per Med. 2015 ; 12 (1) : 23-32.
Pubmed PMID: 25642274.
Christensen KD, Vassy JL, Jamal L, Lehmann LS, Slashinski MJ, Perry DL, Robinson JO, Blumenthal-Barby J, Feuerman LZ, Murray MF, Green RC, McGuire AL. " Are physicians prepared for whole genome sequencing? A qualitative analysis " Clin Genet. 2015 ;
Pubmed PMID: 26080898.
Robinson JO, Slashinski MJ, Chiao E, McGuire AL. " It depends whose data are being shared: Considerations for genomic data sharing policies. " J Law Biosciences. 2015 ;
Burstein MD, Robinson JO, Hilsenbeck SG, McGuire AL, Lau CC. " Parental consent for pediatric data sharing " Pediatrics. 2014 ; 133 (4) : 690-697.
Pubmed PMID: 24616359.
Robinson JO, Slashinski MJ, Wang T, Hilsenbeck SG, McGuire AL. " Participants’ recall and understanding of genomic research and large-scale data sharing " J Empir Res Hum Res Ethics. 2013 ; 8 (4) : 42-52.
Pubmed PMID: 24169421.
Oliver JM, Slashinski MJ, Wang T, Kelly PA, Hilsenbeck SG, McGuire AL. " Balancing the risks and benefits of genomic data sharing: Genome research participants’ perspectives " Public Health Genomics. 2012 ; 15 (2) : 106-114.
Pubmed PMID: 22213783.
McGuire AL, Oliver JM, Slashinski MJ, Graves JL, Wang T, Kelly PA, Fisher W, Lau CC, Goss J, Okcu M, Treadwell-Deering D, Goldman AM, Noebels JL, Hilsenbeck SG. " To share or not to share: A randomized trial of consent for data sharing in genome research " Genet Med. 2011 ; 13 (11) : 948-955.
Pubmed PMID: 21785360.
Ramoni RB, McGuire AL, Robinson JO, Morley DS, Plon SE, Joffe S. " Experiences and attitudes of genome investigators regarding return of individual genetic test results " Genet Med. 2013 ; 15 (11) : 882-887.
Pubmed PMID: 23639901.
McGuire AL, Robinson JO, Ramoni RB, Morley DS, Joffe S, Plon SE. " Returning genetic research results: Study type matters " Per Med. 2013 ; 10 (1) : 27-34.
Pubmed PMID: 24077424.
Oliver JM, McGuire AL. " Exploring the ELSI universe: Critical issues in the evolution of human genomic research " Genome Med. 2011 ; 3 (6) : 38.
Pubmed PMID: 21699745.
Pereira S, Robinson JO, McGuire AL. " Return of individual genomic research results: What do consent forms tell participants? " Eur J Hum Genet. 2016 ; 24 (11) : 1524-1529.
Pubmed PMID: 27329739.
Robinson JO, Carroll T, Feuerman LZ, Perry DL, Hoffman-Andrews L, Walsh RC, Green RC, McGuire AL. " Participant and study decliners’ perspectives about the risks of participating in a clinical trial of whole genome sequencing " J Empir Res Hum Res Ethics. 2016 ; 11 (1) : 21-30.
Pubmed PMID: 26928896.