The following news and events support the research efforts, provide information and promote awareness about congenital CMV. If you are unable to find a story please look under Resources for more social media posts. You can also find published articles supportive of our mission under Publications.
New Editorial Review: 40 Years is Long Enough!
A new editorial review on the history of CMV vaccines titled “40 Years is Long Enough!” by Dr. Gail J Demmler Harrison was recently published on the Journal of Infectious Diseases. The article describes the complex journey of a CMV vaccine.
One example of the journey is described on the Phase 1 Study of 4 Live, Recombinant Human Cytomegalovirus Towne/Toledo Chimera Vaccines in Cytomegalovirus–Seronegative Men by Adler et al.
Congenital Cytomegalovirus Infection: The Elephant in Our Living Room
A new editorial published on JAMA Pediatrics titled “Congenital Cytomegalovirus Infections: The Elephant in Our Living Room” by Dr. Gail J. Demmler-Harrison explores strategies for identifying newborns with congenital CMV (cCMV) infections. Some of the strategies discussed on the editorial include targeted CMV screening of newborns who fail their newborn hearing screen and universal screening of all newborns. The editorial goes on to discuss issues that arise from each proposed programs including detection methods, treatment and the cost of taking such a task.
In a related article titled “Cost-effectiveness of Universal and Targeted Newborn Screening for Congenital Cytomegalovirus Infection” by Soren Gantt, Francois Dionne and Fred F. Kozak the issue of cost is investigated further. The authors explain that screening newborns for cCMV appears to be cost-effective. The article goes on to describe the cost differences between CMV targeted testing, universal screening and no testing.
Women's Attitudes Toward Practicing Cytomegalovirus Prevention Behaviors
The Preventive Medicine Reports journal published a study on “Women's attitudes toward practicing cytomegalovirus prevention behaviors” by Rosemary Thackeray & Brianna M. Magnusson from Brigham Young University.
The goal of the study was to “understand the frequency with which women practice CMV prevention behaviors, women's attitudes toward the behaviors, and predictors of those attitudes”. Data was collected from 840 women, between the ages of 18 to 40 years, in the United States who agreed to respond to online survey requests. The inclusion criteria, besides age and gender, included women who had a child under 5 years of age, were pregnant or planning a pregnancy within 12 months from taking the survey.
The conclusions of the study revealed that women are open and responsive to practicing CMV precautions including hand washing, not kissing children on or near mouth, and not sharing food or cups and utensils. The research also found that women were more willing to practice these precautions if they believed that their risk of infection was reduced.
To learn more read the full article titled “Women's attitudes toward practicing cytomegalovirus prevention behaviors”.
Quartz Magazine Features Article about CMV and Zika Virus
Microcephaly is a trending topic on social media as a result of the growing interest in the active Zika virus infections in Latin America.
The article “The CMV virus causes microcephaly in babies, and it’s much more widespread than Zika” from Quartz Magazine addresses the issue that approximately 4,000 newborns in the United States alone are at risk of being born with microcephaly, hearing loss, among other symptoms of a congenital CMV infection.
A New Approach to Spreading CMV Awareness
Update: Lillian Salerno has made great progress on her road to recovery. See her latest CMV health update.
The Animal Planet Channel featured the story of Lillian Grace Salerno, who at 19 months experienced hundreds of seizures a day. Her parents were forced to make a life-altering decision. Watch the Animal Planet Channel video trailer "Can a Baby Survive with Half a Brain?".
The full episode titled "All I got for Christmas is brain surgery" is now available for viewing.
Lillian's story was also featured on the Texas Children's Hospital Blog website on 2014. Read the full story titled "How Texas Children’s Saved Our Daughter By Removing Half Her Brain".
A Step to CMV Awareness
Update: In June 2015 proposed bill SB 791 (Madeline Leigh Armstrong Act) was signed into law in the state of Texas. The new CMV law was effective Sept. 1, 2015.
Dr. Gail Demmler Harrison, the CMV Team and CMV families provided testimony on congenital CMV at the Texas Senate and House Committee Hearings for SB 791 in Austin, Texas.
Proposed bills SB 791 and HB 2174 are identical;
Part 1 provides for CMV education for pregnant women and materials for education to be provided by the Texas State Health Department, modeled after the CDC website recommendations for CMV Precautions to prevent CMV during pregnancy.
Part 2 provides for CMV testing targeted at newborns who are deaf at birth, so that CMV diagnosis can be made early, and babies and their families can be educated about appropriate management.
April 30 - May 4, 2017
Noordwijkerhout, The Netherlands