What We're About

Mission Statement

Congenital CMV Disease is the most common congenital infection in humans occurring in an average of one percent of all live births in the United States. This translates to 30,000 to 40,000 infants born each year. The registry is a research program working to learn more about those children born with symptoms of congenital CMV disease. This national surveillance program tracks trends over time, identifies risk groups, and lays groundwork for evaluation of future intervention programs.

Aside from research, the National Congenital CMV Disease Registry provides an outreach program consisting of this web site, written educational material, and an annual newsletter, CMV Updates for the purpose of educating health care professionals, families, and all others interested in learning more about congenital CMV disease. Additionally, we established and maintain a parent support network as a forum where parents of children congenitally infected with CMV can contact other parents dealing with the challenges of raising a child born with CMV. Finally, through this medium we also hope to raise public awareness of congenital CMV disease and the impact it may have on individuals, their families, and our society.