Parent-to-Parent Support Network

The National Congenital CMV Disease Registry assists families affected by CMV by providing a way to exchange information and by offering help and support to one another.

If you are interested in participating but have questions about joining the network, e-mail your inquiries to cmv@bcm.edu. You can also contact us via postal mail or phone or fax.

To join now, you may download and print the parent permission form (PDF) from this web site or complete online. Upon completing and signing the form, please mail it to the address on the form.

To Families currently on the Network - We appreciate periodic updates to your family's contact information and your child's profile. Please give us an update about your child's developmental milestones, new treatments achievements and accomplishments. After we receive an update, we will send you the current parent list. Current members of parent-to-parent please update your information.

For a variety of helpful parent recommended resources, please visit the Parents of the Support Network. (PDF)

Note: In order to view the PDF's, your computer must be equipped with Adobe Acrobat Reader.

Participants in Parent-to-Parent Network
For families in the United States: