Rett Syndrome Information Package

To receive an information package about Rett Syndrome, please call The Blue Bird Circle Rett Center at 832-822-7388, toll-free at 1-888-430-7388, or email rett@bcm.edu.

For other resources and information about Rett Syndrome, please contact

International Rett Syndrome Foundation
9121 Piscataway Road, Suite 2-B
Clinton, MD 20735
Voice: 301-856-3334 Or 1-800-818-7388 (RETT)
Fax: 301-856-3336
E-mail: irsa@rettsyndrome.org
http://www.rettsyndrome.org

The International Rett Syndrome Foundation is a merger between The International Rett Syndrome Association and the Rett Syndrome Research Foundation. The aims of IRSF are to provide an information and referral service, offer parent support through contact with other parents, and research aimed at finding the cause of RS and methods for its prevention, control and cure.

Intensive research into genetic, neurochemical, neurophysiological and neuropathological mechanisms for RS is under way at several research centers throughout the world. The International Rett Syndrome Foundation provides grants to promising researchers in the field of RS, and sponsors scientific symposia to bring scientists together to evaluate progress and explore new ideas.

RETT Syndrome Strollathon

The First Houston Texas Strollathon is scheduled on October 31, 2009 at 1:00 at Rob Fleming Park in The Woodlands, Texas. There will also be a concert the next day and a golf tournament the day after. Everyone is invited and please share this information with anyone else that wishs to attend the Strollathon. Please contact the Seiler family at kenna@hope-causey.com for more information about this event.

October Recognized as RETT Syndrome Awareness Month

Each October The Blue Bird Circle Rett Center celebrates October as Rett Syndrome Awareness Month, on the crosswalk at Texas Children's Hospital. This year we will celebrate the event on Tuesday, October 13, 2009. We will hold this event from 11:00 a.m. until 1:00 p.m. on the Texas Children's Hospital Crosswalk area, 3rd floor, between West Tower and the Clinical Care Center Building. Kevin Black, singer and songwriter, will again be present to sing for the families that attend the event. Kevin Black is a father of a girl who had been diagnosed with Rett syndrome.

For a Powerpoint picture presentation of the 2008 event, please email Gay Horelica at either gayh@bcm.edu, or gxhoreli@texaschildrens.org. Please call the Rett Office at 832-822-7388 (toll-free at 1-888-430-7388) for more information about this event.

Dr. Huda Zoghbi is honored by the International Rett Syndrome Foundation

Huda Zoghbi, M.D., receives the International Rett Syndrome Foundation Circle of Angels Research Award.
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For More Information About the Rett Center Appointments and Clinic, please use this link:

http://www.texaschildrens.org/carecenters/Neuro/Neurology/rettcenter.aspx