Congenital and Hereditary Disorders:
Patient Education Resources on the Internet

Please note: These links are provided as an information guide only. Any information retrieved from these sources should not be considered as medical or professional advice, and should be reviewed with your health care provider.

Basic Genetics Resources

• Genetics & Your Health: A Guide for the 21st Century Family by Raye Lynn Alford, PhD, FACMG
• The National Human Genome Research Institute (NHGRI), National Institutes of Health (NIH)
• Human Genome Project Information, Department of Energy
• The Genetic Alliance

Congenital Malformations

• Congenital Malformations of the Larynx (from eMedicine.com)
• Congenital Malformations of the Nose (from eMedicine.com

Hearing

• The National Institute on Deafness and Communication Disorders (NIDCD), National Institutes of Health (NIH)
• Deafness Genes (Society for Neuroscience)
• The Genetic Alliance
• Hearing Disorders and Deafness (MEDLINEplus)
• Hereditary Hearing Loss Overview (Richard JH Smith, M.D., Glenn Edward Green, M.D. and Guy Van Camp, Ph.D. )

Other

• Cleft Palate: FAQ (Vitual Hospital, University of Iowa)
• Cleft Lip and Palate (MEDLINEplus)
• Facial Injuries and Disorders (MEDLINEplus)
• GeneClinics.org Search Page (Free registration required)
• Online Mendelian Inheritance in Man
• Birth Disorder Information Directory

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Bobby R. Alford Department of Otolaryngology-Head and Neck Surgery
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Last modified: November 16, 2005