PLANNING FOR THE FUTURE Developing Your State Plan For Independent Living A National Teleconference TRAINING MANUAL November 1997 1997 ILRU Program 2323 S. Shepherd, Suite 1000 Houston, TX 77019 713-520-0232 (v) 520-5136 (TTY) 520-5785 (fax) Permission is granted for duplication of any portion of this manual, providing that the following credit is given to the project: Developed as part of the IL NETWORK: NCIL/ILRU National Training and Technical Assistance Project. Developers of this TRAINING MANUAL: Bob Michaels Cynthia Dresden John Nelson Rose Shepard Laurel Richards Anne-Marie Hughey Dawn Heinsohn Ray Lin TABLE OF CONTENTS Agenda Benefits List of Presenters and IL NET Staff About the Presenters IL NET Resource Materials National Resources on Independent Living Readings and Resources for the Independent Living and Disability Rights Movements State IL Councils: Overview 1996 Title VII, Part B Title VII, Part C Guide to Title VII Sections Regarding the Statewide Planning Process Title VII Attachments Development of State Plans for Independent Living Evaluation IL NET Needs Assessment Teleconference Audio Tape Order Form PLANNING FOR THE FUTURE Developing your State Plan for Independent Living Agenda November 12 & 14, 1997 Bob Michaels Welcome and Introductions Bob Michaels State Plan and 704 Report Findings Review of methods and trends Questions and answers John Nelson Introduction to the State Plan Timelines for completing the state plan Differences between this year's plan and last Questions and answers Deb Wisniewski State Plan Review Sections 1-8 Ann Meadows State Plan Review Sections 9-16 All Questions and Answers Bob Michaels Wrap-up and Adjournment PLANNING FOR THE FUTURE Developing your State Plan for Independent Living Benefits Find out how requirement for the next three-year plan will change from the last planning period. Review elements of the state plan for independent living. Learn how other SILCs operate. Get answers to your questions. LIST OF PRESENTERS AND IL NET STAFF PRESENTERS Bob Michaels Conference Moderator ILRU Program 65 E. Kelly Lane Tempe, AZ 85284 (602) 961-0553 (v/TTY) 961-0533 (fax) michaels@impulsedata.com Ann Meadows Executive Director West Virginia SILC P.O. Box 625 Institute, WV 25112-0625 (304) 766-4624 (v) 766-4624 (TTY) 766-4721 (fax) annwv@citynet.net John Nelson IL Branch Chief RSA 330 C Street, SW, Room 3326 Washington, DC 20202 (202) 205-9362 (v/TTY) 205-9772 (fax) John_Nelson@ed.gov Deb Wisniewski Excutive Director Wisconsin SILC P.O. Box 7851, Room 85IL Madison, WI 53707-7851 (608) 261-8397 (v) 261-8396 (TTY) 267-6749 (fax) wisnida@dhfs.state.wi.us IL NET STAFF NCIL Anne-Marie Hughey Raymond Lin 2111 Wilson Blvd., Suite 405 Arlington, VA 22201 (703) 525-3406 (v) 525-3407 (TTY) 525-3409 (fax) ncil@tsbbs02.tnet.com June Isaacson Kailes Disability Policy Consultant 6201 Ocean Front Walk, #2 Playa del rey, CA 90293 (310) 821-7080 (v) 827-0269 (fax) jik@jik.com Roland Sykes President, Greater Independence through Management Programs, Inc. 6256 Ramblewood Drive Dayton, OH 45424 (937) 237-8360 (v) rsykes@gimp.com ILRU Laurel Richards Bob Michaels (see above) Cynthia Dresden Dawn Heinsohn Laurie Gerken Redd 2323 S. Shepherd, Suite 1000 Houston, TX 77019 (713) 520-0232 (v) 520-5136 (TTY) 520-5785 (fax) ilru@ilru.org ABOUT THE PRESENTERS Ann Meadows serves as executive director for the West Virginia Statewide Independent Living Council. Prior to accepting this position in November of 1996, she was involved with the SILC as a member of a task force which was formed in December 1995 to develop a strategic plan for independent living services and the use of Title VII, Part B funds. Ann worked for the Mountain State Centers for Independent Living, in Huntington and Beckley, West Virginia, for eleven years. She was hired initially as an independent living skills trainer and advanced to the position of vice president of programs by the time she accepted her position with the SILC. Ann is a West Virginia native with a background in home economics and curriculum development. John Nelson is chief of the Independent Living Branch, Rehabilitation Services Administration (RSA), Department of Education. Previously, he acted as special assistant to the commissioner of RSA as well as chief of administrative management services at RSA. One of the most influential shapers of Title VII regulations for the amended Rehab Act (1992) and the recently approved standards and indicators of compliance for independent living centers, Nelson has been a strong presence in the progress for independence and empowerment of people with disabilities. His efforts within the regulatory and policy development process have ensured that the regulations in place today reflect to the largest degree possible the interests and philosophy of independent living. Deb Wisniewski has been involved with disability issues in a variety of ways for over fifteen years. During this time, she worked for the Wisconsin Council on Developmental Disabilities, the Waisman Center at the University of Wisconsin, the YMCA, and at a local elementary school. As a result, her background includes experiences with education, recreation, employment, and community living issues. For the last three years, Deb has been the director for the State Independent Living Council in Wisconsin. She is also currently involved with Independence Highway, an Internet project focusing on disability issues, developed jointly by the SILC, the Wisconsin Coalition of Independent Living Centers, the Wisconsin Coalition for Advocacy, the Wisconsin Council on Developmental Disabilities, and WisTech (Wisconsin's assistive technology project). IL NET RESOURCE MATERIALS The IL NET: National Training and Technical Assistance project, a collaboration of the National Council on Independent Living (NCIL) and the Independent Living Research and Utilization (ILRU) Program, is committed to promoting a national network of centers for independent living, statewide independent living councils, and others involved in the independent living field. Through training and technical assistance activities, project staff seek to provide individuals at all levels of expertise with educational and networking opportunities. To enhance our ability to reach as wide an audience as possible, we are making many of our training materials available in the form of individual fact sheets and packets. The following is a description of resource materials concerning the Rehab Act, statewide independent living councils, state IL plans, funding, and other topics. These materials may be duplicated without acquiring permission, providing that the following credit is given to the project: "Developed as part of the IL NET: NCIL/ILRU National Training & Technical Assistance Project." All materials are available in accessible formats, including copies available to download in either WordPerfect or ASCII from DIMENET in the IL_NETWORK file area. For fact sheets about the Rehab Act, download file 'rehab1.wp' or 'rehab1.asc.' For fact sheets about SILCs, download 'silcpak1.wp' or 'silcpak1.asc.' You will also find each piece of the packets available individually. For assistance with downloading call (508) 880-5325 (v/TTY) or (937) 341-5202 (v), 341-5217 (TTY). For further information or technical assistance, contact ILRU at (713) 520-0232 (v), 520-5136 (TTY) or NCIL at (703) 525-3406 (v), 525-3407 (TTY). FACT SHEETS ABOUT THE REHAB ACT Amendments to the Rehab Act: 1986 & 1992: A Comparison--a set of charts showing changes in the Rehab Act which occurred from 1986 to 1992. Where to Get Information About the Rehabilitation Act--how to obtain copies of the Rehab Act and related background information from the government, from public records, and from DIMENET, the national computer bulletin board for independent living. Terminology Related to the Legislative and Regulatory Process--explanations of terms and concepts related to the legislative process. Key OSERS Staff--a listing of top-level staff members of the Office of Special Education and Rehabilitation Services, the Rehabilitation Services Administration, and the National Institute on Disability and Rehabilitation Research (NIDRR). FACT SHEETS ABOUT STATEWIDE INDEPENDENT LIVING COUNCILS (SILCs) Composition of Statewide IL Councils--an easily understood overview of SILC responsibilities, composition criteria, and examples of some of the problems faced by state IL councils with direct, concrete suggestions for dealing with them. Questions About SILC Governance--identifies many of the pivotal questions an organization can use to establish the bylaws with which it governs itself; covers specific questions for councils operating as private, nonprofit corporations and seeking a tax exempt status. What Every SILC Member Should Know--a checklist of basic information that each SILC member should understand in order to be an effective, voting participant of a statewide IL planning body. Prototype Job Descriptions--basic duties, authorities, and qualifications for the SILC chair, vice-chair, secretary, treasurer, and member; intended as a guideline from which to build individualized descriptions. SILC Profile Analysis--a grid designed to reveal a basic profile of any SILC by mapping characteristics and affiliations of the members; simple, easy-to-follow instructions show whether or not a council is consumer controlled according to legal mandate. SILC Membership Compliance Assessment--a checklist for determining whether or not your SILC is in compliance with the compositional guidelines outlined in section 705(b)(2) the Rehab Act. Directory of Statewide IL Councils--a complete list of all SILCs with contact information for state chairs; current as of May 1995. AUTHORIZED USES OF FUNDS AVAILABLE TO THE STATE IL COUNCIL Authorized Uses of Title VII, Part B--this document gives an overview of the history and development of Title VII, with an emphasis on gains made in controlling how the dollars allotted to support independent living programs and services are spent. Funding Under SILC Jurisdiction--identifies funding sources available to the statewide IL council: Title VII, Parts B and C, Title I, Part C, Social Security Reimbursement Funds, and private or other sources. Funding for Title VII, Part B: Fiscal Years 1994 & 1995--exact 1995 dollar amounts allocated from this source for each state and territory. Funding for Title VII, Part C: Fiscal Year 1994--dollar amounts by state and territory showing 1994 allotments as well as post-reallotment amounts for fiscal year 1993. Revised 3/96 _________________________ Developed by the IL NET: NCIL/ILRU National Training and Technical Assistance Project. Requests for technical assistance on this and other independent living subjects may be directed to the IL NET Project, c/o ILRU at (713)520-0232 (v), 520-5136 (TTY), 520-5785 (Fax), or NCIL at (703) 525-3406 (v), 525-3407 (TTY), 525-3409 (Fax). NATIONAL RESOURCES ON INDEPENDENT LIVING Several national organizations have been established to provide technical assistance on particular concerns relevant to issues in independent living. National Council on Independent Living Founded in 1982, NCIL is a membership organization representing independent living centers and individuals with disabilities. NCIL has been instrumental in efforts to incorporate independent living philosophy in federal legislation and regulations. National headquarters are located outside Washington, D.C. at 2111 Wilson Blvd., Suite 405, Arlington, VA 22201, (703) 525-3406 (v), 525-3407 (TTY), 525-3409 (fax). Association of Programs for Rural Independent Living One of the best resources for information about rural independent living is APRIL. Established in 1986, APRIL is an association of 33 centers and other organizations and individuals across the country serving a predominantly rural constituencies. For further information, contact APRIL president Michael Mayer at the Summit Independent Living Center, 1900 Brooks Street, #120, Missoula, MT 59801, (406) 728-1630 (v/TTY), or Linda Tonsing Gonzales at 1919 Kiva Road, Santa Fe, NM 87505, (505) 984-8035 (v/fax). Disability and Business Technical Assistance Centers on ADA There are ten regional DBTACs funded by the National Institute on Disability and Rehabilitation Research, the U.S. Department of Education, to provide technical assistance and training on the Americans with Disabilities Act (ADA). The Southwest DBTAC, operated by ILRU, features an Hispanic outreach program. By calling 1-800-949-4232 from anywhere in the country, your call will be routed automatically to the appropriate regional DBTAC. American Disabled for Attendant Programs Today One of the oldest and most active grassroots disability rights advocacy groups is ADAPT. Following its tremendous success in advocating for accessible transportation, ADAPT has focused its mission on personal assistance services. With local chapters in many cities around the country, ADAPT is centered in Colorado at 201 South Cherokee St., Denver, CO 80223, (303) 733-9324 (v), 733-6211 (fax). Disability Rights Education and Defense Fund DREDF is an organization dedicated to promoting the civil rights of individuals with disabilities through research, education, and advocacy. The DREDF offices are located at 1633 Q St., NW, Suite 220, Washington, DC 20009, (202) 986-0375 (v), 462-5624 (fax), and 2212 Sixth Street, Berkeley, CA 94710, (510) 644-2555 (v), 841-8645 (fax). Disabled Individuals Movement for Equality Network DIMENET is a computer network that serves the independent living and disability rights movements. It was established in 1985 to meet the demand for a computer network that directly serves the interests of all people with disabilities and that is fully accessible to people with visual impairments. You can access DIMENET from any of three host sites: (508) 880- 5412 (Taunton, MA), (937) 341-5205 (Dayton, OH), and (918) 582-3622 (Tulsa, OK). If you have problems or questions regarding accessing DIMENET, technical assistance is also available from individuals at DIMENET regional host sites: Taunton (508) 880-5325 (v/TTY), Dayton (937) 341-5202 (v), 341-5217 (TTY), and Tulsa (918) 592-1235 (v/TTY). Additional help may be obtained from Roland Sykes at (937) 237-8360 (v) or Paul Spooner at (508) 875-7853 (v/TTY). Independent Living Research Utilization Program ILRU Program is a national center for information, training, research, and technical assistance on independent living. Founded in 1977, its goal is to expand the body of knowledge in independent living and to improve utilization of results of related research and demonstration projects. ILRU, 2323 S. Shepherd, Suite 1000, Houston, TX 77019, (713) 520-0232 (v), 520- 5136 (TTY), and 520-5785 (fax). World Institute on Disability Originally founded in 1983 from within the grassroots disability rights movement, WID's focus is now international in scope. WID conducts research and training in public policy, personal assistance services, and independent living from its headquarters at 510 16th Street, #100, Oakland, CA 94612, (510) 763-4100 (v), 208-9493 (TTY). RESEARCH AND TRAINING CENTERS ON INDEPENDENT LIVING Four research and training centers funded by the National Institute on Disability and Rehabilitation Research (NIDRR), U.S. Department of Education, focus on independent living. They are: the ILRU Research and Training Center on Independent Living at TIRR; the RTC: IL at the University of Kansas; the RTC on Personal Assistance Services at the World Institute on Disability (WID); and the RTC on Public Policy and Independent Living, also at WID. All four centers conduct research and training projects designed to address the needs of individuals with disabilities, as well as state and private entities involved with independent living. More information about each is given below. ILRU Research and Training Center on Independent Living at TIRR The goals of the ILRU RTC are to enhance management performance in independent living centers through improved management and operational practices developed and tested in research-based models, and disseminated through training, technical assistance, and materials development projects. A major emphasis of these training and technical assistance projects is the promotion of networking among individuals and organizations in the independent living field. ILRU RTC is guided by the independent living philosophy, particularly with regard to the substantial involvement of people with disabilities at all levels of RTC operations. Director: Lex Frieden Associate Director: Quentin Smith Director of Research: Peg Nosek Director of Training: Laurel Richards Coordinating Director: Laurie Gerken Redd For more information, contact: ILRU Program 2323 S. Shepherd, Suite 1000 Houston, TX 77019 (713) 520-0232 (v); 520-5136 (TTY); 520-5785 (fax) http://www.ilru.org Research and Training Center on Independent Living at the University of Kansas The University of Kansas operates a national research and training center which focuses on aspects of independent living particular to rural and other underserved populations, including persons with cognitive and psychiatric disabilities. In addition, the RTC conducts consumer control training, conducts research in prevention of secondary health conditions in people with disabilities, and studies successful attainment of vocational rehabilitation goals. Director: Glen W. White Co-Director: James F. Budde Assistant Director: John Youngbauer Training Director: Kenneth J. Golden For more information, contact: RTC-IL at Kansas 4089 Dole Building University of Kansas Lawrence, KS 66045 (913) 864-4095 (v/TTY); 864-5063 (fax) http://www.lsi.ukans.edu/rtcil/rtcbroc.htm The Research and Training Center on Public Policy and Independent Living Funded by NIDRR at the World Institute on Disability, the RTC-PPIL conducts research and training on major disability policy issues including independent living, leadership development, peer support, and community integration. In addition, WID is attempting to establish the first full curriculum for disability studies. The program will offer courses of study at the undergraduate, graduate, professional training, and continuing education levels. Director: Herb Leibowitz Director of Research: Tanis Doe For more information, contact: RTC-PPIL World Institute on Disability 510 16th Street, Suite 100 Oakland, CA 94612-1500 (510) 763-4100 (v); 208-9493 (TTY); 763-4109 (fax) http://www.wid.org The Research and Training Center on Personal Assistance Services at WID One of two RTCs operated by WID, the RTC-PAS was established for the purpose of creating greater understanding about how personal assistance service systems can further the self- sufficiency and economic independence of individuals with disabilities. The RTC will perform a comprehensive evaluation of PAS programs across the country and will seek to define effective PAS from the consumer's point of view. In developing new service programs, the RTC-PAS also focuses on underserved or unserved populations. Director of Training: Simi Litvak Research Assistant: Valerie Bivona For more information, contact: RTC-PAS World Institute on Disability 510 16th Street, Suite 100 Oakland, CA 94612-1500 (510) 763-4100 (v); 208-9493 (TTY); 763-4109 (fax) Revised 6/97 http://www.wid.org _________________________ Developed by the IL NET: NCIL/ILRU National Training and Technical Assistance Project. Requests for technical assistance on this and other independent living issues may be directed to the IL NET Project, c/o ILRU at (713) 520-0232 (v), 520-5136 (TTY), 520-5785 (fax), or NCIL at (703) 525-3406 (v), 525-3407 (TTY), 525-3409 (fax). READINGS AND RESOURCES FOR THE INDEPENDENT LIVING AND DISABILITY RIGHTS MOVEMENTS Updated October 1997 Bowe, F. (1992). Equal Rights for Americans with Disabilities. New York: Franklin Watts, Inc. DeJong, G. "Independent Living: From Social Movement to Analytic Paradigm." Archives of Physical Medicine and Rehabilitation 60 (October 1979): 435-446. DeJong, G. "Physical Disability and Public Policy." Scientific American 248, no. 6 (June 1983): 40-49. DeJong, G. Environmental Accessibility and Independent Living Outcomes: Directions for Disability Policy and Research. East Lansing: University Center for International Rehabilitation, 1981. DeJong, G. and Janice Hughes. Report of the Sturbridge Conference on Independent Living Services. Boston: Tufts Medical Rehabilitation Research and Training Center, 1981. Fasser, Carl E., Quentin Smith, Lex Frieden, Laura W. Smith, J. David Holcomb. "Addressing the Health Care Needs of People with Disabilities." Journal of the American Academy of Physician Assistants 7, no. 1 (January 1994): 26-32. Harmon, G., Ladd, J., and Evans, E. "Being a player: A guide to the ILRU lobbying regulations for advocacy charities." A Report by the Advocacy Forum; A Project of the Alliance for Justice. Washington, D. C.: Harmon, Curran, Gallagher & Spielberg, 1991. House, R., Richards, L., Rennick, V., Jones, D., Dresden, C., and Smith, Q. (1995). Expanding Your Management Foundation: Readings in Management Literature--Strategic Planning. Houston: ILRU. House, R., Rennick, V., Jones, D., Richards, L., and Dresden, C. Expanding Your Management Foundation: Readings in Management Literature--Basic Supervision (In press, 1997). Houston: ILRU. House, R., Rennick, V., Jones, D., Richards, L., and Dresden, C. Expanding Your Management Foundation: Readings in Management Literature--Hiring, Diversity, and More. (In press, 1997). Houston: ILRU. O'Day, B. Issues in Independent Living: Independent Living Programs for Transition to Community Living. (In press, 1997). Houston: ILRU. Kailes, J. I. Advocacy: Reality or Rhetoric Inventory. 5 pages. A popular questionnaire tool used to help evaluate if an independent living center or other disability related organization is truly committed to advocacy and systems change. Revised 1997. Self-published. Kailes, J. I. Americans with Disabilities Act Compliance Guide for Organizations. 225 pages. 1995. Self-published. Kailes, J. I. Centers for Independent Living. 12 pages. Revised 1997. Self-published. Kailes, J. I. Resource List: Wellness, Self-Care, Exercise & Aging with Disability. Research and Training Center on Aging with Disability. Los Angeles, California. Third Edition, 1996. Kailes, June. "Language is More Than a Trivial Concern!" (1984) reprinted in Disability Prideand A Guide to Planning Accessible Meetings (available through ILRU publications). Kailes, June Isaacson. Disability Pride: The Interrelationship of Self-Worth, Self-Empowerment, & Disability Culture. Houston: ILRU Program, 1993. Kailes, June Isaacson, and Darrell Jones. A Guide to Planning Accessible Meetings. Houston: ILRU Program, 1993. Kailes, June Isaacson. Putting Advocacy Rhetoric Into Practice: The Role of the Independent Living Center. Issues in Independent Living No. 8. Houston: ILRU Program, 1988. Lachat, Mary Ann. An Evaluation and Management Information System for Independent Living. Staying on Track: ILRU Management Support Series. Houston: ILRU Program, 1988. Lachat, Mary Ann. The Independent Living Service Model: Historical Roots, Core Elements, and Current Practice. Hampton: Center for Resource Management, 1988. National Council on the Handicapped (now the National Council on Disability). Toward Independence: An Assessment of Federal Laws and Programs Affecting Persons with Disabilities - With Legislative Recommendations. February 1986. Available from NCD, 1331 F Street, NW, Suite 1050, Washington, DC 20004 (202) 272-2004 (v), 272-2074 (TTY). National Council on the Handicapped (now the National Council on Disability). On the Threshold of Independence: A Report to the President and the Congress of the United States. January 1988. Available from NCD (see above). Nosek, Peg, Yayoi Narita, Yoshiko Dart, and Justin Dart. A Philosophical Foundation for the Independent Living & Disability Rights Movement. Occasional Paper No. 1. Houston: ILRU Program, 1982. Pflueger, Susan Stoddard. Independent Living. Emerging Issues in Rehabilitation. Washington, D.C.: Institute for Research Utilization, 1977. Richards, Laurel and Quentin Smith. An Orientation to Independent Living Centers. Houston: ILRU Program, 1987. Shapiro, Joseph P. No Pity. New York: Random House, Inc. 1993. Shreve Maggie, Patricia Spiller, Eric Griffin, Nancy Waldron, and Lynda Stolzman. Martha Williams, ed. Consumer Control in Independent Living. Available from: Center for Resource Management, 2 Highland Road, South Hampton, NH 03847; (603) 394-7040 (v/TTY), 394-7483 (fax). Smith, Quentin, Lex Frieden, and Laurel Richards. "Independent Living." Encyclopedia of Disability and Rehabilitation. New York: Macmillan, Inc., (in press, 1994). Smith, Quentin, Laura W. Smith, Kym King, Lex Frieden, and Laurel Richards. Health Care Reform, Independent Living, and People With Disabilities. Issues in Independent Living No. 11. Houston: ILRU Program, 1993. Smucker, B. (1991). The Nonprofit Lobbying Guide: Advocating Your Cause--and Getting Results. San Francisco: Jossey-Bass, Inc. United States Department of Education. Comprehensive Evaluation of the Title VII, Part B of the Rehabilitation Act of 1973, as Amended, Centers for Independent Living Program. January 1986. Available through clearinghouses (see below). Willig, Chava Levy. A People's History of Independent Living. 1988. Available from the Research and Training Center on Independent Living, 4089 Dole Building, University of Kansas 66045; (913) 864-4095 (v/TTY). In a special edition on independent living in American Rehabilitation 20, no. 1 (Spring 1994): Giordiano, Gerard and Bruno J. D'Alonzo. "The Link Between Transition and Independent Living," 2-7. Shreve, Maggie. "The Greater Vision: An Advocate's Reflections on the Rehabilitation Act Amendments of 1992," 8-13. Smith, Laura W., Quentin W. Smith, Laurel Richards, Lex Frieden, and Kym King. "Independent Living Centers: Moving Into the 21st Century," 14-22. Chappell, John A., Jr. "The Whole is Greater Than the Sum of its Parts," 23-29. Moore, J. Elton and Barry C. Stephens. "Independent Living Services for Older Individuals Who are Blind: Issues and Practices," 30-34. Montagano, Tim. "Bringing the Rehabilitation Family Together: An IL-VR Partnership," 35-36. Lougheed, Val, Bev Hunter, and Susan Wilson. "Partners for Independence: A Team Approach to Community-Based Rehabilitation," 37-38. Baker, David. "Independent Living in Communities: The Role of the Independence Fund in Vermont," 39-41. Lachat, Mary Ann. "Using the Power of Management Information System Technology to Support the Goals of Centers for Independent Living," 42-48. In a special issue on independent living in OSERS 6, no. 2 (Winter-Spring 1994): French, Duane. "Independent Living: Driven By Principles of Democracy," 37-38. Kafka, Bob. "Perspectives on Personal Assistance Services," 11-13. Kennedy, Jae, Hale Zukas, and Simi Litvak. "Independent Living and Personal Assistance Services: The Research, Training, and Technical Assistance Programs at the World Institute on Disability," 43-45. Mathews, Mark R. "Learning from the Experts: Best Practices in Rural Independent Living," 23-29. Michaels, Robert E. "Title VII: A Major Step Forward," 8-10. Nelson, John. "Changes in the Rehabilitation Act of 1973 and Federal Regulations," 4-8. Smith, Quentin, Lex Frieden, Laurel Richards, and Laurie Gerken Redd. "Improving Management Effectiveness in Independent Living Centers through Research and Training," 30-36. Tate, Denise and Julie Daugherty. "The Effects of Insurance Benefits Coverage: Does It Affect Persons with Spinal Cord Injury?" 19-22. Westbrook, John D. "Consumer-Driven Supported Employment: Consolidating Services for People with Significant Disabilities," 14-18. Ziegler, Martha. "How Parent Networks Are Working with Independent Living Centers," 39-42. In a special issue on rural independent living in the Rural Special Education Quarterly 11, no. 1 (1992): Clay, Julie Anna. "Native American Independent Living," 41-50. Curl, Rita M., Shanna M. Hall, Linda A. Chisholm, and Sarah Rule. "Co-workers as Trainers for Entry-level Workers: A Competitive Employment Model for Individuals with Disabilities," 31-35. Nosek, Margaret. "The Personal Assistance Dilemma for People with Disabilities Living in Rural Areas," 36-40. Potter, Carol G., Quentin W. Smith, Huong Quan, and Margaret A. Nosek. "Delivering Independent Living Services in Rural Communities: Options and Alternatives," 16-23. Richards, Laurel and Quentin Smith. "Independent Living Centers In Rural Communities," 5-10. Seekins, Tom, Craig Revesloot, and Bob Maffit. "Extending the Independent Living Center Model to Rural Areas: Expanding Services through State and Local Efforts," 11-15. Smith, Quentin W., Carl E. Fasser, Stacy Wallace, Laurel K. Richards, and Carol G. Potter. "Children with Disabilities in Rural Areas: The Critical Role of the Special Education Teacher in Promoting Independence," 24-30. We Won't Go Away, videocassette. Sells for $20 each, including postage, from the World Institute on Disability, 510 16th Street, Suite 100, Oakland, CA 94612 (510) 763-4100 (v), 208-9493 (TTY). The Disability Rag. A bi-monthly publication reflecting ideas and discussions in the disability rights movement. Available at $12 for a one-year subscription. Write to: Subscriptions, The Disability Rag, 1962 Roanoke Ave, Louisville, KY 40205 (502) 459-5343 (v/TTY/fax). From the television series, Real Life, broadcast on PBS stations, 1995-1996. Childress, D. and King, K., prods. (1995). Real Life: Health Care. Videotape. Houston: ILRU. Childress, D. and King, K., prods. (1995). Real Life: Universal Design. Videotape. Houston: ILRU. Childress, D. and King, K., prods. (1995). Real Life: Media Portrayals. Videotape. Houston: ILRU. Childress, D. and King, K., prods. (1995). Real Life: ADA. Videotape. Houston: ILRU. Most of the readings cited above can be obtained from resource clearinghouses. Several are listed below and can be reached for further information about publications and modem-accessible databases by mail or telephone. -- National Clearinghouse of Rehabilitation Training Materials, Oklahoma State University, 816 West Sixth Ave., Stillwater, OK 74078 (800) 223-5219. -- National Rehabilitation Information Center (NARIC), 8455 Colesville Road, Suite 935, Silver Spring, MD 20910 (800) 346-2742 (v), 227-0216 (TTY). -- ERIC Clearinghouse on Disabilities and Gifted Education (formerly the ERIC Clearinghouse on Handicapped and Gifted Children), 1920 Association Dr., Reston, VA 22091, (800) 328-0272 (v/TTY) at the Council for Exceptional Children, (703) 620-3660, ext. 307 (v). ILRU also offers a number of publications and other materials on various independent living subjects. For a listing of resource materials contact ILRU at 2323 S. Shepherd, Suite 1000, Houston, TX 77019, (713) 520-0232 (v), 520-5136 (TTY). For resource materials and technical assistance on the Americans with Disabilities Act, there are ten regional Disability and Business Technical Assistance Centers (DBTACs). One toll-free number, 1-800-949-4232, will direct your call to a technical assistant in your region. Resource materials are published by the U.S. Department of Justice and many are available free of charge. The Southwest DBTAC in Houston, Texas offers technical assistance and some resource materials in Spanish as well as English. Revised 10/97 Developed by the IL NET: NCIL/ILRU National Training and Technical Assistance Project. Requests for technical assistance on this and other independent living subjects may be directed to the IL NET Project, c/o ILRU at (713) 520-0232 (v), 520-5136 (TTY), 520-5785 (Fax), or NCIL at (703) 525-3406 (v), 525-3407 (TTY), 525-3409 (Fax). STATE IL COUNCILS: OVERVIEW 1996 NUMBER OF SILC MEMBERS OVERVIEW In section 705 of Title VII, authority to appoint council members is given to state governors (exceptions: there are a couple of states in which an entity other than the governor has appointing authority). The Act does not stipulate council size, instead leaves that determination to each state. The Act does, however, impose specific requirements with regard to SILC membership. Here is a brief summary of membership issues: -- Prior selecting members, the governor is required to solicit recommendations from a broad range of organizations and individuals involved in disability fields. -- Mandatory members include: 1) a center director who has been selected to serve on the council by the other executive directors of independent living centers in the state, 2) a representative of the state vocational rehabilitation agency, and 3) representatives from other state agencies that provide services to people with disabilities. Note this very important distinction: Representatives of state agencies are not permitted to vote. -- Non-mandatory members may include additional representatives of centers, parents and guardians, representatives of organizations serving people with disabilities, and business people. -- Council members must be knowledgeable about centers and independent living services. -- Council members must provide statewide representation. -- Council members must include a broad range of disabling conditions. -- At least 51 percent of council members must be people with disabilities, and members who are employees of centers and state agencies are not included in this count. SILC MEMBERSHIP 1995 1996 Average 19.29 18.98 Median 18 18 Maximum 44 44 Minimum 10 11 NUMBER OF DISABILITY GROUPS REPRESENTED OVERVIEW Councils are required to be representative of a broad range of individuals with disability. The ILRU study used the same five classifications of disability groups that are being used in RSA's 704 annual performance reports. These are: physical sensory cognitive mental multiple Note that these are not completely satisfactory classifications and that efforts are underway by ILRU project staff to identify more satisfactory classifications. DISABILITY GROUPS 1995 1996 Average 3.69 4.06 Median 4 4 NUMBER OF MEMBERS EMPLOYED BY OR REPRESENTING A CIL OVERVIEW Section 705(b)(2)(a) requires that at least one executive director of an independent living center be chosen by the other center directors in the state to serve on the council. In addition to this one center director, any number of representatives of centers may serve as council members. CIL Representatives 1995 1996 Average 3.10 3.27 Median 3 3 FUNDING FOR SILC ADMINISTRATIVE EXPENSES OVERVIEW Section 705(e)(1) requires the council to develop--in conjunction with the state agency--a resource plan to cover expenses associated with fulfilling council responsibilities. This resource plan is, in effect, a budget for the council's administrative expenses, and it is to be a part of the state independent living plan. Administrative Expenses 1995 1996 Average $ 67,856 $ 89,509 Median $ 50,000 $ 57,197 Maximum $400,863 $380,093 Minimum $ 3,172 $ 5,000 ESTABLISHMENT OF SILCS OVERVIEW Section 705(a) carries a remarkable statement that makes clear Congress' intent that SILCs be partners with rather than subordinate to the state rehabilitation agency: "The council shall not be established as an entity within a state agency." One way this "separate establishment" requirement of Section 705 has been manifest is in whether or not the council has office space, and, if so, where it is located. As of late 1996, a total of 33 SILCs had office space. Such space was located in a variety of settings, including: SILCs with Office Space Government Building CIL Professional Office Building Other Nonprofit Agency Home Other 1995 27 11 1 8 2 4 1 1996 33 12 2 10 1 6 2 In some states, compliance with this requirement for formal separation has taken the form of councils becoming incorporated as nonprofit organizations. The following chart indicates the number of SILCs that have obtained a 501(c)(3) status and the number of those which have plans to become incorporated. 1995 1996 Currently Non-Profit 5 7 Plan to be Non-Profit in 3 Years 12 14 SILCS WITH PAID STAFF OVERVIEW Most SILCs have staff members; however, there is great variety regarding such staff members' authority, accountability, and independence of the state agency. Some councils employ executive directors, and these individuals tend to have significant responsibility and authority, reporting to the SILC membership much as CIL directors report to their boards. Other councils have staff with much less responsibility and authority--a frequently used title is administrative assistant. In still other councils, the state agency provides the council with staff support in the form of state agency employees. Number of SILC Paid Staff 1995 1996 Average 0.96 1.29 Median 1 1 Maximum 5 4 In light of Section 705(a)'s requirement that councils be independent of state agencies, a question was added to the survey inquiring who is the employer of the council's staff. The responses are provided below. Note how many council staff members have more than one entity to which they report. Number of SILC Employer of SILC Staff DSU Only Employer of SILC Staff SILC Only Employer of SILC Staff DSU and SILC Employer of SILC Staff Other 1995 29 5 12 8 4 1996 34 4 18 8 4 TITLE VII, PART B STATE FUNDING ALLOCATIONS, FY 1998 1998 State Independent Living Services Program $0 varience 1996 POPULATION STATE ALLOCATED $ POPULATION SHARE US TOTAL $21,640,410 STATE TOTAL $21,532,206 269,067 100.000000% ALABAMA $291,746 4,273 1.588080% ALASKA $291,746 607 0.225594% ARIZONA $291,746 4,428 1.645687% ARKANSAS $291,746 2,510 0.932853% CALIFORNIA $1,936,420 31,878 11.847607% COLORADO $291,746 3,823 1.420836% CONNECTICUT $291,746 3,274 1.216797% DELAWARE $291,746 725 0.269450% FLORIDA $874,724 14,400 5.351827% GEORGIA $446,657 7,353 2.732777% HAWAII $291,746 1,184 0.440039% IDAHO $291,746 1,189 0.441897% ILLINOIS $719,644 11,847 4.402993% INDIANA $354,810 5,841 2.170835% IOWA $291,746 2,852 1.059959% KANSAS $291,746 2,572 0.955896% KENTUCKY $291,746 3,884 1.443507% LOUISIANA $291,746 4,351 1.617069% MAINE $291,746 1,243 0.461967% MARYLAND $308,098 5,072 1.885032% MASSACHUSETTS $370,058 6,092 2.264120% MICHIGAN $582,787 9,594 3.565655% MINNESOTA $291,746 4,658 1.731167% MISSISSIPPI $291,746 2,716 1.009414% MISSOURI $325,533 5,359 1.991697% MONTANA $291,746 879 0.326684% NEBRASKA $291,746 1,652 0.613973% NEVADA $291,746 1,603 0.595762% NEW HAMPSHIRE $291,746 1,162 0.431863% NEW JERSEY $485,229 7,988 2.968777% NEW MEXICO $291,746 1,713 0.636644% NEW YORK $1,104,645 18,185 6.758540% NORTH CAROLINA $444,835 7,323 2.721627% NORTH DAKOTA $291,746 644 0.239346% OHIO $678,701 11,173 4.152497% OKLAHOMA $291,746 3,301 1.226832% OREGON $291,746 3,204 1.190781% PENNSYLVANIA $732,339 12,056 4.480668% RHODE ISLAND $291,746 990 0.367938% SOUTH CAROLINA $291,746 3,699 1.374751% SOUTH DAKOTA $291,746 732 0.272051% TENNESSEE $323,164 5,320 1.977203% TEXAS $1,161,927 19,128 7.109010% UTAH $291,746 2,000 0.743309% VERMONT $291,746 589 0.218905% VIRGINIA $405,472 6,675 2.480795% WASHINGTON $336,102 5,533 2.056365% WEST VIRGINIA $291,746 1,826 0.678641% WISCONSIN $313,443 5,160 1.917738% WYOMING $291,746 481 0.178766% D.C. $291,746 543 0.201808% PUERTO RICO $291,746 3,783 1.405970% OUTLYING AREAS: $108,204 366 0.14% AMERICAN SAMOA $27,051 60 0.022269% GUAM $27,051 157 0.058271% N. MARIANAS $27,051 52 0.019300% VIRGIN ISLANDS $27,051 97 0.036002% TITLE VII, PART C STATE FUNDING ALLOCATIONS, FY 1998 1998 Centers For Independent Living Program STATE ALLOCATED $ FY 1998 FY 1997 FY 1998 Inc. 3% increase US TOTAL $43,817,891 $41,491,127 $2,326,764 ALABAMA $505,225 $505,225 $0 ALASKA $602,952 $602,952 $0 ARIZONA $537,389 $469,885 $67,504 ARKANSAS $476,478 $462,600 $13,878 CALIFORNIA $3,868,761 $3,519,010 $349,751 COLORADO $697,758 $697,758 $0 CONNECTICUT $476,478 $462,600 $13,878 DELAWARE $476,478 $413,115 $63,363 FLORIDA $1,747,605 $1,581,372 $166,233 GEORGIA $892,371 $802,191 $90,180 HAWAII $476,478 $462,600 $13,878 IDAHO $695,762 $695,762 $0 ILLINOIS $1,437,769 $1,339,993 $97,776 INDIANA $708,872 $646,454 $62,418 IOWA $476,478 $462,600 $13,878 KANSAS $566,935 $566,935 $0 KENTUCKY $476,478 $462,600 $13,878 LOUISIANA $528,044 $483,698 $44,346 MAINE $481,900 $481,900 $0 MARYLAND $615,545 $561,678 $53,867 MASSACHUSETTS $954,181 $954,181 $0 MICHIGAN $1,269,426 $1,269,426 $0 MINNESOTA $565,302 $523,090 $42,212 MISSISSIPPI $476,478 $475,900 $578 MISSOURI $1,060,757 $1,060,757 $0 MONTANA $476,478 $462,600 $13,878 NEBRASKA $789,481 $789,481 $0 NEVADA $476,478 $462,600 $13,878 NEW HAMPSHIRE $476,478 $462,600 $13,878 NEW JERSEY $969,435 $885,072 $84,363 NEW MEXICO $551,100 $551,100 $0 NEW YORK $2,206,958 $2,020,349 $186,609 NORTH CAROLINA $888,730 $801,522 $87,208 NORTH DAKOTA $476,478 $462,600 $13,878 OHIO $1,355,972 $1,242,220 $113,752 OKLAHOMA $672,259 $672,259 $0 OREGON $554,713 $554,713 $0 PENNSYLVANIA $1,463,134 $1,345,481 $117,653 RHODE ISLAND $709,848 $709,848 $0 SOUTH CAROLINA $476,478 $462,600 $13,878 SOUTH DAKOTA $476,478 $462,600 $13,878 TENNESSEE $645,643 $585,518 $60,125 TEXAS $2,321,402 $2,106,091 $215,311 UTAH $547,704 $547,704 $0 VERMONT $768,562 $768,562 $0 VIRGINIA $1,301,749 $1,301,749 $0 WASHINGTON $671,493 $605,013 $66,480 WEST VIRGINIA $904,979 $904,979 $0 WISCONSIN $626,225 $570,702 $55,523 WYOMING $476,478 $462,600 $13,878 D.C. $476,478 $462,600 $13,878 PUERTO RICO $476,478 $462,600 $13,878 AMERICAN SAMOA $154,046 $154,046 $0 GUAM $53,610 $0 $53,610 N. MARIANAS $53,610 $0 $53,610 VIRGIN ISLANDS $247,036 $247,036 $0 GUIDE TO TITLE VII SECTIONS REGARDING THE STATEWIDE PLANNING PROCESS Section 1: Purpose of the State Plan 1.1 Philosophy of the programs 1.2 Participation in the programs Section 2: Legal Basis and State Certification Section 3: Plan Submittal 3.1 Frequency of submittal 3.2 State plan development 3.3 Public hearings 3.4 Opportunity for review and comment under state review process Section 4: Statewide Independent Living Council 4.1 Composition of the SILC 4.2 Placement of the SILC 4.3 Plan for provision of resources to the SILC 4.4 Designated statewide independent living council responsibilities Section 5: Designation and Responsibilities of the State Unit(s) 5.1 Designation 5.2 Designated state unit responsibilities Section 6: Staff and Staff Development 6.1 Personnel administration 6.2 Personnel development 6.3 Affirmative action 6.4 Nondiscrimination Section 7: Financial Administration 7.1 General provisions 7.2 Source of state funds 7.3 Financial recordkeeping 7.4 Access to financial records 7.5 Financial reports Section 8: State Administration of Part C Program 8.1 Funds earmarked to support CILs 8.2 State applies to administer Part C funds 8.3 State administers funds in compliance with 723 8.4 Monitoring and oversight Section 9: Objectives 9.1 Objectives 9.2 Consideration of CIL workplans 9.3 Timelines for achievement of objectives 9.3 Consistency of objectives with purposes of Section 1 Section 10: Information on Use of Part B, Chapter 1 Funds 10.1 Use of 711 funds in support of 713 purposes 10.2 Explanation of how 713 activities further objectives in Section 9.1 Section 11: Outreach Section 12: Extent and Scope of Independent Living Services Section 13: Eligibility and Independent Living Plans 13.1 Eligibility for receipt of services 13.2 Consumer service record 13.2 Independent living plans 13.3 Notice about CAP Section 14: Statewide Network of Centers for Independent Living 14.1 Network design 14.2 Identification of unserved and underserved areas and priorities Section 15: Cooperation, Coordination, Communication Section 16: Evaluation Plan TITLE VII ATTACHMENTS Attachment 4 Plan for the Provision of Resources to the SILC (Resource Plan) Attachment 8 Policies, Practices and Procedures for Award of Grants Under Section 723 Attachment 9 State Plan for Independent Living Objectives (SPIL) Attachment 10 Part B, Chapter 1 Activities Attachment 11 Outreach Attachment 12 Extent and Scope of IL Services Attachment 13 Duplication of Records (CSLS) and ILPs Electronic Record Keeping Attachment 14 Design for a Network of CILs Attachment 15 Working Relationships Attachment 16 Evaluation Plan DEVELOPMENT OF STATE PLANS FOR INDEPENDENT LIVING Introduction to a Single State Plan Under the newly reauthorized Rehabilitation Act Amendments of 1992, the state plan for independent living is to be jointly developed by the statewide independent living council (SILC) and the designated state unit (DSU). The DSU is the same state agency, usually your general vocational rehabilitation (VR) agency, that is the "designated state unit" for Title I or basic vocational rehabilitation services. The SILC is an autonomous, independent body representing people with significant disabilities across the entire state and the interests of centers for independent living and others. It is to be a planning body and to work effectively with the state's vocational rehabilitation agency and, if you have one, blind services agency as well. There is only one state plan for independent living and the plan is only required to be submitted once every three years. This is different from Title I where the Rehabilitation Services Administration (RSA) has allowed two state plans--one for the general VR agency and another for the blind services agency. Since there is only one state plan, the SILC and the VR and blind services agencies must all agree on the contents and budget of that plan. Purpose of the Plan The purpose of the state plan is to describe how the state's network of independent living programs and services will meet the independent living needs of persons with disabilities in the state. The plan must address how federal, state and other funds will be used within the state to develop and maintain an IL program. Authorized Uses of Title VII, Part B Funds Title VII, Part B funds may be used: -- to support the operations of the SILC; -- to provide independent living services to individuals with severe disabilities; -- to demonstrate ways to expand and improve independent living services; -- to support the operations of CILs; -- to support activities to increase the capacities of groups to develop comprehensive approaches or systems for providing independent living services; -- to conduct studies and analyses, gather information, develop model policies and procedures, etc., presenting information, strategies and recommendations to federal, state or local policy makers to enhance independent living; -- to train individuals with disabilities and organizations on the independent living philosophy; and -- to provide outreach to unserved, underserved, minority groups, and urban and rural populations. A specific format for the state plan is provided by RSA to the chair of the statewide independent living council and to directors of state vocational rehabilitation and blind service agencies. The SILC and state agencies must develop the state plan and submit it, along with any required information on RSA's "pre-print" plan form by a certain date. The next major deadline for state plan submission to RSA is July 1, 1998. The jointly developed three-year state plan for independent living is due on that date. Copies of state plan pre-print forms can be obtained from RSA's regional offices or central office. Contact John Nelson, Chief, Independent Living Branch, RSA, 400 Maryland Avenue S.W., Washington, D.C. 20202, (202) 205-9362 (voice) for more information. Also, copies of the Rehab Act and state plan pre-print forms are available for downloading on the DIMENET computer network (508) 880-5412 in the "Files" section or from RSA's website at "http://www.ed.gov/offices/OSERS/RSA/rsa.htm. State Plan Requirements The federal government gives each state a certain amount of funding under Title VII, Part B based upon percentage of population. RSA, through the Rehabilitation Act Amendments statute or law, develops parameters for how each state may spend this money. Determination of how the Title VII, Part B funds will be spent in each state will be made jointly by the SILC, VR agency, and blind services agency (if one exists in the state). It is extremely important that SILCs be thoroughly knowledgeable about the process of Title VII, Part B funding, the requirements of the state plan, and the state's status and progress toward a network of centers for independent living in order to be effective planners of Part B funding. The specific requirements of the state plan include: -- specific objectives and timelines; -- an explanation of how objectives are consistent with and further the purpose of Title VII; -- a description of how Title VII services are coordinated with or complement other federally or state funded services to people with disabilities; -- a description of how federal and state funding for CILs and independent living services will be coordinated; -- a description of how outreach to unserved, underserved, minority groups, urban populations, and rural populations will be conducted; -- a description of how individuals receiving assistance under Title VII will be notified of the client assistance program (CAP); -- a description of affirmative actions that will be taken to employ qualified individuals with disabilities; -- a description of fiscal control and accounting procedures that will be used; -- a description of how records will be kept if independent living services are to be provided to individuals, especially amount and disposition of funds to an individual recipient, total cost of project, and amount or costs of project funded with other sources; -- a description of how public hearings will be held during formulation and review of the plan; and -- a description of how the plan's effectiveness will be evaluated, based both on achievement of objectives and extent of satisfaction of individuals with disabilities. As a general rule, the bureaucratic nature of the state/federal program has not been conducive to creativity in the development of state plans in the past. With the advent of SILCs and their real authority in the planning process, individuals with significant disabilities and centers for independent living have an opportunity to develop an innovative statewide vision for the first time since Title VII was written. Conflicts which arise over the development of state plans are usually rooted in a desire to continue doing things the way they have been done versus creating new methods and believing that the entire process is open for debate. We urge you to work with your SILC and your CIL colleagues in your state to develop the best state plan possible. Adapted from a paper developed for NCIL's Rehab Act Committee by Maggie Shreve, 1994. TELECONFERENCE AUDIO TAPE ORDER FORM An audio cassette of the teleconference entitled: Planning for the Future: Developing your State Plan for Independent Living is available. If you would like a copy, please fill out the order form below and return to NCIL with your check or money order. NAME: CENTER: ADDRESS: TELEPHONE: FAX: Number of sets: x $25.00 = $ (shipping included) Please mail order form and payment to: National Council on Independent Living 2111 Wilson Blvd., Suite 405 Arlington, Virginia 22201 703-525-3406 (v) 703-525-3407 (TTY) 703-525-3409 (fax)