READINGS
in Independent Living

Achieving Diversity at Independence, Inc.

2000
by Susan Mikesic
Ed Roberts Gives Us Advice

On August 11, 1992, Ed Roberts visited Independence, Inc., the center for independent living in Lawrence, Kansas, for an informal visit with our staff. Ed was in the area, having been invited as the keynote speaker at a conference on children and youth sponsored by Kansas State Social Rehabilitation Services. During his visit to our center, one of our staff members mentioned to Ed that she noticed a great lack of racial diversity at our midwestern regional conferences. She said that, in attending conferences and workshops, she would often look around and notice that she was one of only two or three people of color in a group consisting of hundreds of Caucasian people. She asked Ed, if this lack of diversity was everywhere in the disability rights community, or was it a problem only in the Midwest. Ed's answer was discouraging, but enlightening. He said that (at that time) a lack of racial diversity was a problem in the independent living movement everywhere. However, just when our staff member was about to react in a crest-fallen way, Ed looked her right in the eye and said, "So I guess you'll just have to do something about it, huh?" His comment to her, and to all of us, was a pivotal moment in the development of our Human Diversity Task Force. We realized at that moment, that, yes, it was time to do something.

We started by examining the diversity of our staff, our board of directors, and the consumers of our services and we realized that we were not as diverse as we would like to be.

A Task Force is Formed

The Cultural Diversity Task Force, a group of staff members and consumers, began to meet regularly with the goal of increasing the racial diversity of our consumers, our staff, and our board members. One of our original task force members described her experience as a woman of color coming through our front door for the first time and encountering, in our staff, a sea of white faces. This was not comfortable for her. Stories like hers helped us to realize that we needed more diversity on our staff for consumers to feel more comfortable with us.

After attending a workshop on "isms"--racism, ageism, sexism and homophobia--we realized that we did not want to limit ourselves and that we wanted to increase all aspects of multiculturalism at our center, including race, religion, gender, age, sexual orientation, socioeconomic status and disability.

We changed our name to the Human Diversity Task Force and deliberated on how to market our services to underserved populations. One of our committee members commented that, if we wanted to communicate a welcome to diverse populations, we would need to know how to do so. In other words, we needed to begin by educating ourselves about diversity issues, so that we could communicate caring and understanding to diverse groups when they did access our services. Therefore, we began a series of in-service trainings for our staff. We also sent out flyers and advertised these presentations in our agency newsletter, inviting consumers, colleagues, and the general public.

We immediately noticed that these talks not only provided us with quality training about diversity issues, but also were effective in helping us market our services. What we originally thought of as a preparatory step before beginning our marketing efforts, actually became our marketing. For example, one of our early presentations was conducted by a panel of professors from Haskell Indian Nations University, a college in Lawrence exclusively for Native American students. We were not serving very many Native American consumers at the time, and we believed that some of the Haskell students had disabilities and could probably use our services. We decided to invite these professors, who were Native American themselves, to speak with us about their cultural beliefs and customs. In the month following that presentation, we received five new referrals from among Haskell students. One might envision the networking that led to these referrals: The professors we met probably took information about our services back to Haskell. They told their colleagues and their students about us, and those colleagues and students spoke to their associates and the word spread. In this grass-roots way, our reputation as a welcoming place was enhanced within this community of people. As a result, the Haskell students with disabilities who sought our services could approach us with some confidence that they would be treated with respect by us. In the years following, we found more and more opportunities to network with organizations that provide services for Native Americans in our community and now we often receive referrals from among this population.

The Human Diversity trainings work so well in this way, that we have continued them for the past seven years. Several times per year, we bring in speakers from a wide assortment of backgrounds to teach us about their culture, their beliefs, their civil rights issues, and more:

  • Consumers who use wheelchairs have described their trips abroad.
  • International students from the University of Kansas have told us about their native countries.
  • Gay, lesbian and bisexual people have spoken about their lives and issues.
  • Elders have spoken with us about aging issues.
  • Holocaust survivors have described their experiences in the Holocaust.
  • Women with disabilities who were abused or battered have shared their stories.
  • Homeless people have spoken about their needs and their issues.
  • A panel of deaf people has made suggestions for working with sign language interpreters.
  • A panel of consumers with psychiatric disabilities has talked with us about their disabilities, made suggestions and given feedback to our staff.

The Human Diversity Task Force has sponsored other creative ventures. Every October, during the week of our annual agency Open House, we host a Human Diversity Potluck and encourage people to bring diversity topics to discuss. Sometimes we ask an outside facilitator to lead us in a discussion.

Twice we chose the topic of Spiritual Diversity for our potluck event and encouraged people to bring sacred objects that illustrate their beliefs. People brought prayer beads, sacred books, pictures, and figurines. During the event, we gave any interested person the opportunity to show their object to the group and speak about what their object means to them.

Twice we have invited people to bring "nostalgic" objects, items instilled with meaning for the person. People brought objects from their childhood, gifts from a beloved relative or friend, musical instruments and souvenirs from trips. Many people brought items that exhibited some aspect of their culture or their family of origin. Deep and personal sharing ensues as we celebrate our diversity in this very personal way.

In 1998, we participated in the Season for Non-Violence, a grass-roots event commemorating the 30th anniversary of the passing of Martin Luther King, Jr., and the 50th anniversary of the passing of Gandhi. Community members were invited to host a public workshop on issues of non-violence. We hosted a public forum entitled, "Non-violent Social Activism," and our panel consisted of people from various areas of civil rights activism, including those working with women's issues, disability rights advocacy, issues of aging, and Native American concerns. Panel members spoke about ways that they have non-violently acted to uphold civil rights and brainstormed about ways we could work together to become more of a political force.

For one of our early trainings, the Human Diversity Task Force invited a panel of individuals who are gay, lesbian or bisexual to speak with us about their lives and about issues they face. During this discussion, we asked the panel members how we could communicate a welcome to gay, lesbian and bisexual citizens. They suggested that we hang Safe Zone Stickers in our windows and on our bulletin boards. These stickers, which feature an upside down pink triangle, a universal symbol of gay pride, indicate to visitors at our center that Independence, Inc. is a safe place for gay, lesbian and bisexual people. Periodically, we host additional panel discussions and print articles in our monthly newsletter reminding our staff and visitors of the responsibilities involved in being a Safe Zone.

Twice a year we host a public talk that we call our Ability Awareness series. For each of these events, we choose a different disability and invite a panel of individuals who have that particular disability to speak about their experiences and about ways that the community could become more accommodating. We market these talks extensively and sometimes have 100 people in attendance. These events are opportunities for the community to learn about disability rights issues, and for consumers to give and receive support.

For the Ability Awareness talks, we sometimes focus on an issue that affects people with disabilities as a group, rather than focusing on a particular disability. These are our Ability Awareness Public Forums which have focused on topics such as homelessness and housing concerns and breaking down barriers to employment.

At any of these Ability Awareness events, the consumers chiefly run the show. The panel always consists of consumers. An Independence, Inc. staff member moderates the discussion, and one or more staff member might share briefly about our services, or speak about laws that protect the rights of people with disabilities. Sometimes we invite other community service providers to say a few words about their services. The primary speakers, however, are always consumers.

We have recently begun hosting Ability Awareness forums in small towns within the three-county area that we serve. These forums are part of our rural outreach that is designed to increase our service delivery in rural communities. We have made efforts to learn about the culture, customs, values, and preferences of the people from these rural communities. For example, we learned not to hold a public meeting between the hours of four and six p.m. in these small towns, sometimes referred to as "bedroom communities." It is very common for citizens from these communities to commute to their jobs, and during late afternoon hours local residents prefer not to travel the busy and often dangerous rural highways unless absolutely necessary.

Once a year a small group of consumers and staff get together for our Annual Planning Meeting to brainstorm potential topics for future human diversity trainings. We usually show a video with a diversity theme at the meeting. We try to choose inspirational or interesting, thought-provoking films as we want to encourage people to attend and participate in this planning process. Our Human Diversity Task Force chair and her assistant meet monthly to plan specific events, contact speakers and organize publicity. Very little time is involved in this simple process which produces very great benefit.

Very few of our speakers have asked for monetary compensation. Out of more than 70 workshops, involving more than 100 speakers, only two people have asked for monetary compensation. Everyone else has donated his or her time and skills free-of-charge. We have found that when we explained our purpose, we usually encounter an outpouring of generosity and support. As a result, the Human Diversity Task Force functions with a very minimal budget--just a moderate amount for photocopying and mailing flyers to advertise our events.

Tracking Our Success

Since the inception of our Human Diversity Task Force in 1993, we have seen many changes at our center. We have more staff now, our budget has grown and we have several new programs. Two years ago we moved into a new building that we designed and built. During these seven years, we have reached some of our Human Diversity goals to increase the diversity of our staff, board and consumers, and some of our goals are yet to be attained.

The racial diversity of our staff has increased. In 1993, we had two staff persons who were non-white out of a total of 22 people, or nine percent. Currently, we have five staff members who are people of color, out of a total of 36, or 14 percent. (According to 1990 census information, the population of Douglas County, Kansas, where Independence, Inc. is located, is 89 percent Caucasian.)

We do not have a reliable source of statistical data on the ethnic diversity of our consumers. Our consumers are invited to disclose their ethnicity at the time of intake, but less than forty percent of consumers chose to do so in 1999. Of those who reported, sixty-eight percent were Caucasian and thirty-two percent were non-white. In order to gain a perspective on how the racial diversity of our consumers has changed over the past several years, this author spoke with nine staff members who have worked at Independence, Inc. for at least six years. Five of these reported that they see more people of color now as compared with several years ago; the other four say the proportions seem about the same. One staff member interviewed has worked as a receptionist or back-up receptionist, which allowed him to observe firsthand the influx of our consumers. He reported that when he first began working in 1986, he estimated that about 2 percent of our consumers were non-white. Now, through observation, he estimates that about ten percent of our consumers are non-white.

According to staff observation, particularly in our benefits advocacy, housing advocacy, computer training, and payroll assistance programs, we are serving more non-white consumers now than six or seven years ago. Also, we are networking more often with other agencies that serve non-whites, particularly those that serve Haskell students and Native American citizens. We serve a substantial number of Russian and other international consumers, but we generally do not see many members of the Asian or Hispanic communities. The housing specialist reports working with several consumers who speak languages other than English, including Asian, Russian and Spanish. According to staff observation, we are serving more African American consumers now than we were seven or more years ago.

Of course, we do not ask consumers about their sexual orientation, but we have had no consumer complaints due to homophobic behavior on the part of any member of our staff. Since 1993, we have been able to maintain our connection to the gay and lesbian community through engaging gay, lesbian and bisexual individuals in our Human Diversity Task Force trainings and through courteous behavior on the part of our staff. We receive word-of-mouth referrals from the gay community and from our county AIDS project. It is common for consumers who are gay or lesbian to "come out" to our staff, perhaps prompted by the Safe Zone stickers we display.

We are serving more people who have disabilities that are considered traditionally underserved by CILs. Until the early 1990's our center primarily provided services for wheelchair-users and other people with physical disabilities. In the early 1990's, we identified several disabilities as "underserved" and have increased our involvement with consumers from all of these disability groups over the past seven years.

Looking at new consumer intakes for a calendar year, we initiated services for nearly three times as many people with head injuries, more than twice as many consumers with psychiatric disabilities, more than twice as many consumers with cognitive disabilities and a few more consumers with deafness or hearing loss in 1999 as compared with 1992.

We are also serving more consumers from rural communities, another group identified as "underserved." In 1999, we initiated services for more than twice as many consumers from rural communities, as compared in 1992. Our rural outreach efforts, in which the Human Diversity Task Force plays a small part, have contributed to this growth.

The racial diversity of our board has varied over the last seven years, with between ten and 25 percent being non-whites. Currently, ten percent of our board members are non-white, and we have six openings for new members. Our board is keenly aware of the need for more cultural diversity whenever choosing new members, so we look for this percentage to increase as these positions get filled. Human Diversity Task Force committee members, to solicit board involvement from among our colleagues at organizations that serve multicultural communities.

Your Center Can "Do Something About It", Too

All of this would be very easy for any CIL to duplicate. All you need is a small group of staff and consumers who believe in the value of increasing your center's diversity. Here are some suggestions for getting started:

  • First, get a committee together. Ask among your co-workers, consumers, and colleagues. Who is interested in addressing issues of human diversity at your center? Create a mailing list.
  • Next, begin to meet regularly as a committee. Ask yourselves the following questions:
    • What are the human diversity demographics of your service area? Compare those statistics with the people you serve. Who is missing from your list of consumers? Look at age, gender, race/ethnicity, religion, income level, and education level. Also, look for missing disability categories. Do you serve people who are deaf, blind, or deaf/blind, people with psychiatric disabilities, cognitive disabilities, learning disabilities, head injury, or seizure disorders?
    • Who do you know in your community who could help you? Look for: Colleges/Universities
      Multicultural Centers
      Churches
      Political Organizations
      Civic Groups
      Activists
      Bilingual Newspapers
      Bilingual Radio Stations
      Support Groups
      Coalitions
      (Plan to use these venues for advertising educational workshops, staff and board positions announcements, and networking opportunities.)
  • Are your center's policies and board policies supportive of diversity and intolerant of intolerance? Do items need to be added to the employee handbook or the agency by-laws, making this clear?
  • Are any of your co-workers displaying signs of homophobia, racism or other 'ism's?
  • Based on what you discover after asking these questions, develop a set of goals and a plan. You might want to form committees to address each set of problems. For example, one committee could develop a series of staff trainings. Another committee could develop a proposal for agency policy supporting diversity. A third committee could develop a resource list of possible community collaborators.
  • Look for and begin attending workshops on diversity issues. Encourage staff to participate in continuing education on diversity topics. Get on mailing lists. Make announcements at your staff meetings about training opportunities.
  • Solicit support from your board of directors and administrative staff. Submit proposals describing your plans. Encourage your executive director to mandate staff participation at human diversity inservice trainings. Invite board members to participate. Design some trainings specifically for your board.
  • Build durability into your plan. Establish traditions. Host annual events. Choose a regularly scheduled time for planning meetings. Sponsor regular staff and community events.
  • Get new staff members involved in human diversity issues. Develop an orientation that gives an overview of multiculturalism and guidelines for communicating a welcoming attitude.
  • Keep your goals in mind and continue finding creative ways to work toward them.

The benefits of hosting Human Diversity trainings at your center are likely to be immeasurable. Presentations on human diversity topics are not only educational, but are often good fun. Your staff will provide better quality services to a wider variety of consumers. People with disabilities from underserved populations in your communities will get to know about your services and can gain from them. You will enhance your reputation as a welcoming agency. Your center, your consumers and your community will benefit. Good luck to you on your human diversity journey.

Contact Information

Susan Mikesic
Independence, Inc.
2001 Haskell Avenue
Lawrence, Kansas 66046
(785)841-0333 (voice/TDD)
(785)841-1094 (FAX)
susanm@independenceinc.org

About the Author

Susan Mikesic is the community coordinator at Independence, Inc., an independent living center in Lawrence, Kansas. She has served as the chair of the Human Diversity Task Force at Independence, Inc. since its inception in 1992. Ms. Mikesic, who has a Masters degree in counseling psychology from the University of Kansas, has worked in the area of independent living for 10 years. She has spoken about the Independence, Inc. Human Diversity Task Force at the Statewide Independent Living Council of Kansas (SILCK) summit in Topeka, Kansas; at the National Council on Independent Living (NCIL) conference in Washington, D.C.; and at the IL NET Outreach to Underserved Populations workshop in Portland, Oregon.

This document may be reproduced for noncommercial use without prior permission if the author and ILRU are cited.

The mission of the IL NET is to provide training and technical assistance on a variety of issues central to independent living today--understanding the Rehab Act, what the statewide independent living council is and how it can operate most effectively, management issues for centers for independent living, systems advocacy, computer networking, and others. Training activities are conducted conference-style, via long-distance communication, webcasts, through widely disseminated print and audio materials, and through the promotion of a strong national network of centers and individuals in the independent living field.

ILRU is a program of The Institute for Rehabilitation and Research (TIRR), a nationally recognized, free-standing medical rehabilitation facility for persons with physical and cognitive disabilities. TIRR is part of TIRR Systems, which is a not-for-profit corporation dedicated to providing a continuum of services to individuals with disabilities.

Substantial support for development of this publication was provided by the Rehabilitation Services Administration, U.S. Department of Education. The content is the responsibility of ILRU and no official endorsement of the Department of Education should be inferred.

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