READINGS
in Independent Living

Strengthening the Roles of Independent Living Centers as Advocates for People with Disabilities Through the Implementation of Legal Services

1999
by Adam Brown

Community Resources for Independence (CRI) was established in 1976 by a group of disabled and non-disabled individuals to empower people with disabilities to achieve maximum independence through self-help and self-determination. CRI's service area includes the Counties of Sonoma, Mendocino, Lake and Napa in Northern California. This area is diverse in both population and geographical makeup. Our populations include Native Americans, Asians, Hispanics - our geography covers suburban, urban, rural and coastal areas. This diversity presents a wide variety of challenges. Communication styles, social structures and value systems are often contrary to the orientation and service models of the traditional agency and community professionals. Addressing the needs of these populations has provided the impetus for CRI to continually assess our approaches and our sensitivities, and to remain flexible and creative in seeking to support the needs of individuals with disabilities in these communities.

Like other independent living centers, CRI strives to provide people with disabilities quality representation and support through strong and effective advocacy. CRI has a rich history of challenging those individuals and entities seeking to deny people with disabilities the civil rights that have been bestowed upon them. From addressing disability-related issues before the State Legislature to organizing protests of discriminatory programs, CRI continually seeks to develop and/or adopt better approaches to meeting the needs of people with disabilities in our region. Following in this tradition, CRI has developed the Disability Law Clinic, an innovative program providing consumers and the community at large an affordable resource for legal representation and expertise on the law as it pertains to people with disabilities.

Development of Program
I. Identification of Need

The Disability Law Clinic was born out of the frustration felt by CRI staff who were unable to secure affordable and knowledgeable legal representation for consumers in matters involving disability laws. Repeatedly, people with disabilities would enter CRI seeking legal assistance with issues ranging from disability discrimination to special education. Until 1998, CRI had no attorneys on staff, and could offer only non-legal advocacy and a referral to the local bar association. Affordable legal services were not available to these individuals. Our local Legal Aid offices only assisted with unlawful detainer actions, and the Protection and Advocacy group assigned to our region rarely involved themselves with individual matters. Furthermore, of the few local attorneys practicing in the area of Disability Law, most required retainers far exceeding the consumer's means. As a result of being unable to secure legal representation, these consumers were forced either to surrender their claims or represent themselves on a pro per basis.

The lack of affordable legal representation in the area of Disability Law became increasingly problematic. Not only were consumers placed at a tremendous disadvantage in their respective legal actions, but many offending parties were beginning to see this lack of representation as an invitation to continue discrimination against people with disabilities.

In theory, the solution to this problem seemed quite simple. All CRI had to do was hire a few attorneys who were well versed in disability law and make them available to consumers. Of course, in practice, things would not be so easy.

II. Planning

CRI was faced with several obstacles in establishing a legal service program, the largest of which was a lack of funding. CRI had a limited amount of monies available to allocate towards the program's resources, staffing and operations. A plan was devised wherein the program would begin operations within an extremely limited budget and grow as resources allowed. Raising revenue would need to be an integral part of the program and the agency, as a whole.

As the majority of our consumers had limited financial resources, it was important to keep our program as affordable as possible. It was decided that, outside of situations where back benefits or damages were awarded, all legal representation would be free of charge. Nominal fees, however, would be charged to public or private entities seeking technical assistance or expert testimony. Mediation services would be provided on a sliding scale basis. The revenues collected from these fees would be used to help pay salaries, supplies and overhead. Additionally, CRI would explore funding opportunities through legal services related grants and would seek to establish contracts to provide legal services to other organizations working with people with disabilities. Our calculations forecasted that the program would be fully self-sufficient within two years, with the strong possibility that the program, in this time, would have generated a considerable surplus of funds.

Another major obstacle to overcome was a lack of guidance. No other CIL program could be found that was similar to that which we sought to create. Having no established design to follow, we could not be certain of the viability of our concept. We anticipated needing to alter aspects of our program throughout its development and beyond. As such, the program's parameters were set broadly enough to allow for significant alteration and growth of operation.

III. Implementation

In September of 1998, CRI established the Disability Law Clinic. The program's role was to be: 1) an advocacy unit dedicated to helping people with disabilities better understand and utilize the laws and programs that affect them; 2) a community resource for public and private entities wishing to gain a better understanding of their legal obligations towards people with disabilities; and 3) a mediation service available to facilitate the resolution of disability-related disputes.

The Disability Law Clinic opened to a litany of legal questions and requests for representation. News of its inception had spread quickly through the local communities via word of mouth and distribution of brochures. Within weeks the Disability Law Clinic had been retained in over a dozen actions involving Social Security, the ADA, Special Education, and Fair Housing laws. In addition to providing direct representation, the Disability Law Clinic was being asked to provide technical assistance to other area attorneys, businesses and governmental agencies on the law as it pertained to people with disabilities.

To better handle a growing caseload, CRI recruited a number of private attorneys to volunteer their time and expertise to the Disability Law Clinic. Such assistance has provided the program the opportunity to take cases otherwise too large to handle for a small operation. Additionally, in situations where the Disability Law Clinic has a high volume of open active cases or receives requests for assistance in matters beyond the scope of its representation, these private attorneys provide us with additional avenues of referral.

In seeking to ensure the continued development of the Disability Law Clinic, CRI identified several grants able to help fund an expansion of the Clinic's operations. Applications were submitted and, although not awarded, provided the agency with valuable information on the grant maker's decision process, which will be incorporated into future applications.

IV. Level of Success

Several scenarios illustrate the positive impact the Disability Law Clinic has had on the lives of people with disabilities in our region.

A. Judy, a woman with mental and physical disabilities, had been trying for several years to secure Social Security disability benefits. Social Security denials had been based largely on the reports of consultative examiners who had dismissed almost all her of allegations of disability. Judy learned of our services only a week before she was to appear before an administrative law judge. We agreed to represent her and immediately petitioned the judge for a continuance. With the continuance, we were able to discover inconsistencies in the consultative examinations and collect favorable medical evidence. Following her hearing, Judy was awarded the monthly benefits she sought as well as a lump-sum payment of benefits dating back to the onset of her disability.

B. John sought employment as a teacher. He applied for a job and was informed in the interview that, in spite of his credentials, he would not be offered the job because he did not have a driver's license. John informed the employer that the reason he did not have a driver's license was because of his visual disabilities. The employer informed him that there were no exceptions to the license requirement. John felt that he was being discriminated against and called the Disability Law Clinic to find out if he had any legal recourse. John really wanted this job. The Clinic wrote a letter to the school formally requesting that the license requirement be waived for John. In this letter, we explained, in part, the obligations owed employees with disabilities under state and federal law and the potential consequences of non-compliance. Less than a week later, John was offered the job and informed that the license requirement had been dropped.

C. Debra's ex-husband petitioned the Court for sole custody of their child. Her ex-husband argued that Debra's disability (cerebral palsy) and the fact that her only source of income was SSI, made her unfit to raise their child. Debra approached several legal service organizations and private attorneys for assistance, but no one would represent her on an affordable basis. Debra contacted the Disability Law Clinic, which agreed to represent her without charge. Following our Court appearance, the Judge not only denied Debra's ex-husband's petition, but also issued an order authorizing the investigation of the ex-husband's parental fitness.

Of course, not every situation in which the Disability Law Clinic gets involved ends in success. We understand that it is not possible to win every legal action. What is imperative to us, however, is that we provide the highest quality services to those seeking our assistance. In doing so, we are convinced that our program will do much to curb discrimination and raise awareness in our communities.

V. Future Operations

At the Disability Law Clinic we are continually looking to expand operations. In the coming year, we expect to be awarded at least one major advocacy grant. So far, every grant for which we have applied will enable us to add at least two additional staff to the program. Also, revenues received through technical assistance fees and legal victories will continue to fund staffing and operations.

The Disability Law Clinic will be devoting more time towards training groups and individuals in the law as it pertains to people with disabilities. We have been asked to prepare a course on the ADA for the local Bar Association and have nine advocacy trainings planned for this year. Additionally, the Disability Law Clinic will continue to meet with local government officials (i.e. board of supervisors, city architects, police) regarding legal obligations towards people with disabilities.

The Disability Law Clinic will continue to provide effective legal representation to as many individuals as possible. As mentioned above, we expect to have additional staff to help with our advocacy efforts. Also, several local attorneys have indicated to us their desire to have a closer working relationship with our program.

The Disability Law Clinic will continue to grow and expand until its services are no longer needed. Through vigorous and extensive advocacy, our program will help secure the civil rights bestowed upon people with disabilities. We welcome the assistance of other CILs in this area. Together we can establish a just and accessible society.

Contact Information

Community Resources for Independence
2999 Cleveland Ave., Suite D
Santa Rosa, CA 95403
707.528.2745 (v); 528.2151 (TDD); 528.9477 (fax)
or
1040 North State St., Suite E Ukiah, CA 95483
707.463.8875 (v); 462.4498 (TDD); 463.8878 (fax)

This document may be reproduced for noncommercial use without prior permission if the author and ILRU are cited.

The mission of the IL NET is to provide training and technical assistance on a variety of issues central to independent living today--understanding the Rehab Act, what the statewide independent living council is and how it can operate most effectively, management issues for centers for independent living, systems advocacy, computer networking, and others. Training activities are conducted conference-style, via long-distance communication, webcasts, through widely disseminated print and audio materials, and through the promotion of a strong national network of centers and individuals in the independent living field.

ILRU is a program of The Institute for Rehabilitation and Research (TIRR), a nationally recognized, free-standing medical rehabilitation facility for persons with physical and cognitive disabilities. TIRR is part of TIRR Systems, which is a not-for-profit corporation dedicated to providing a continuum of services to individuals with disabilities.

Substantial support for development of this publication was provided by the Rehabilitation Services Administration, U.S. Department of Education. The content is the responsibility of ILRU and no official endorsement of the Department of Education should be inferred.

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