Family Support Network Information

We would like to extend an invitation to any and all parents of children who are identified with duplication of 7q11.23 to contact us. We feel that it is important to begin a network for support and advice among families with this condition. Our plan is to start simply with a contact list that can be distributed among the families and to begin sending a periodic newsletter. Eventually we plan to form an official support group and e-mail list-serve to allow efficient dissemination of information about this syndrome.

If you are interested in joining the support network, please contact:

Louie & Cherie Ruffino

E-mail: lruffino@sbcglobal.net