skip to content »

Genetics - Evenings with Genetics

Houston, Texas

BCM students are involved in research.
Evenings with Genetics
not shown on screen

Genetics Resources

General:

  1. Genetic Information Nondiscrimination Act (GINA) - summarizes the protections against discrimination based on a person’s genetic information in health insurance coverage and employment.
  2. Genetics Home Reference - new Genetics website at the National Library of Medicine for families and health care professionals.
  3. Genetic Alliance - an international coalition of individuals, professional and genetic support organizations that is working together to enhance the lives of everyone impacted by genetic conditions. This organization was founded by a social worker after her son was born with a congenital heart defect.
  4. National Organization of Rare Disorders (NORD) - a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them.

Clinics:

  1. Baylor Adult Genetics Clinic - provides evaluation, genetic testing and counseling for adults. Phone: 832-822-4293
  2. Genetics Clinic at Texas Children’s Hospital - Children are referred for many reasons including developmental delay or a suspected genetic condition. The first visit includes a detailed family history and a physical exam. When a diagnosis is known, families are counseled about the pattern of inheritance, complications and prognosis of the condition, risk for future pregnancy and reproductive options.
  3. Genetics Clinic at Ben Taub General Hospital - provides genetic evaluation and counseling for children, adults & prenatal patients.
    Children: 713-873-5437
    Adults: 713-873-2290
    Prenatal: 713-873-3674

Down Syndrome:

  1. National Down Syndrome Congress (NDSC) - their mission is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome. Phone: 1-800-232-6372
  2. National Association for Down Syndrome - offers information, support and advocacy.
  3. Down Syndrome Association of Houston

Family Health History:

  1. U.S. Surgeon General’s “My Family Health Portrait” - knowing your family health history is the first step in gathering information that may affect your health. This online tool will help you build your family health tree.
  2. Consumer Genetic Resources - a list of online resources about family health history, genetic testing and other relevant topics, compiled by the America Society of Human Genetics.

Velo-Cardio-Facial Syndrome Resources:

  1. Velo-Cardio-Facial Syndrome (VCFS) Educational Foundation, Inc. - an international not-for-profit organization dedicated to providing support and information to individuals who are affected by Velo-Cardio-Facial syndrome, their families, physicians and other practitioners.
  2. 22q and You Center - a national nonprofit voluntary health organization located within the Children's Hospital of Philadelphia.
  3. The International 22q11.2 Deletion Syndrome Foundation, Inc. - a non-profit organization that was founded by parents in an effort to bring awareness and support for this rare and under recognized condition.
  4. VCFS Texas, Inc. - provides support and resources to individuals with Velo-Cardio-Facial Syndrome (VCFS), their families, professionals, and the community in Texas.

E-mail this page to a friend